Profiles in Lung Cancer: Kelli “Cat” Joseph, Survivor

Profiles in Lung Cancer: Kelli “Cat” Joseph, Survivor

Lung Cancer Awareness Month 2015
Day 16: Kelli “Cat” Joseph, Survivor
“If there was ever a time in history to get lung cancer, that time is now.”

Each day during Lung Cancer Awareness Month (November), a lung cancer blogger will share a profile of someone involved with lung cancer. The person profiled might be a patient, caregiver, advocate, researcher, or healthcare provider.

My own observation about the online lung cancer advocacy community: although smoking causes an awful lot of lung cancer, most advocates whose work I know about are never-smokers. Why aren’t more people with a history of smoking involved in advocacy work? I don’t know. The stigma against lung cancer runs deep in our culture, so shame and guilt may keep people silent, even when it’s in their own best interest to speak up.

I’ll say up front that I am an ex-smoker. I quit in 1981 after accumulating a 7 pack-year history. My cancer’s driver mutation is not usually seen in smokers so smoking probably didn’t cause it per se, but no one knows whether or not the first mutation that started me down this path happened back then, waiting patiently for other mutations to join it and create a cancerous cell. This post is Kelli’s show, not mine, but I have first hand experience from both myself and my loved ones of how cultural influences can make it easy to smoke, and of how hard it is to quit.

Kelli “Cat” Joseph is open about being an ex-smoker, and she is also open about believing that smoking caused her cancer due to the type she has. She quit her tobacco addiction 6 years before she was diagnosed with lung cancer. I’m very happy that she was asked to be interviewed during Lung Cancer Awareness Month to share her perspective on and experience with this disease. 

I interviewed Kelli over the phone, writing furiously as she shared her experience and ideas. She also shared her warmth and humor with me, and I hope you can see a glimmer of them in the interview.

Kelli, tell us about yourself.

I’m a 48 year old lung cancer survivor, currently NED (no evidence of disease). I am a wife to a gorgeous, caring, patient husband, and we are parents to a beautiful, loving, smart teenage boy who has been so resilient throughout the ups and downs of this cancer ordeal. He is amazing. I’m also a business owner. I have a bar called The Cuckoo’s Nest.

That sounds like a recipe for being very busy. Is it fun to be a bar owner?

Yes it is, and it’s even more fun now that the bar is smoke free. When I think of how much second hand smoke I breathed in from the age of 17, I’m very happy that smoking in my bar is now against the law.

What is your diagnosis, and what treatments have you had?

I was diagnosed with squamous cell lung cancer on Friday the 13th, January 2012 after a year of being treated for asthma. Nope, I didn’t have asthma after all. I had a lower and middle lobectomy of my right lung, followed by 35 rounds of radiation. Then I had a recurrence in a lymph node on my heart in 2013. My local doctors wouldn’t touch it so I went back to Northwestern University in Chicago, where the awesome surgeon who did my original surgery said she could take care of it. She did a VATS (video assisted thoracic surgery) procedure that involved going into the pericardial sac. I struggled with pneumonia and shingles for a year while recovering from this surgery. I’m also thankful for the fantastic, groundbreaking lung cancer oncologist who keeps me alive today. I’ve been NED since my last surgery.

What is a typical day for you?

I keep up with lung cancer social media as best as I can, but my family and business keep me busy. I do my best to enjoy each day. I couldn’t do any of this without help from family and friends because tiredness and nerve pain are still issues for me.

What is something that we might not know about you?

I’ve been heavily involved with an online smoking cessation support community for 12 years. Not everyone with lung cancer was a smoker, but the majority were and the more people I help quit now, the less disease we’ll have in the future.

My quit smoking sponsor’s birthday is August 1st which is also World Lung Cancer Day, and he was devastated when I was diagnosed. This year I decided to go all out to celebrate World Lung Cancer Day: I went sky diving. I loved it, and I’m going to do it again!

Here’s an odd story from my life: 18 months before I was diagnosed my beloved cat Rocco died of lung cancer. (Yes, I had smoked in the house when he was young.)

What do you want us to know about lung cancer?

The polarization between lung cancer victims who were smokers vs. non-smokers needs to end now so that we have a chance to get more funding. Funding for AIDS increased when people with AIDS stepped forward and said we don’t deserve this, no one deserves this. We need all lung cancer people to unite and step forward in the same way. We perpetuate the stigma when we ourselves in our LC community are shameful about smoking history.

Every lung cancer patient has had the experience of telling someone he or she has lung cancer, and having that person respond by asking “Did you smoke?”, rather than by saying they are sorry, or asking how you are doing. How do you respond to that question? Does it sting?

This question doesn’t sting me, because I hold myself accountable for my prior actions. I love this question because it gives me a chance to advocate against cigarettes. I grin and say, “Yes I did. If you smoke or have a loved one who smokes, please, please quit or help them to quit!” Hey, I don’t mind being a bad example, I’ve been one all my life one way or another. I’ll admit, there are ways of being a bad example that are a lot more fun.

The lung cancer advocacy effort focuses on a message that “anyone can get lung cancer”, and can get perturbed when major cancer organizations focus on smoking cessation as part of lung cancer awareness campaigns. How can we better balance positive attention to our disease with an important message of disease prevention that could save many lives?

Common sense would dictate that if we could eliminate smoking, we could eliminate 80% of lung cancer cases. Just think of how many resources that would free up to help non-smoking lung cancer victims. We need to come together and support lung cancer prevention as well as better treatments.

I support low dose CT scans for everybody starting at age 30, with repeat scans every five to ten years for those who have negative scans. Anybody can get lung cancer, so let’s screen everybody, not just people over age 55 with a long-term smoking addiction. I hope that’s something the entire LC community can also support.

What brings you hope?

If there was ever a time in history to get lung cancer, that time is now. New discoveries are happening in leaps and bounds. Government funding is increasing but we still have a lot of work to do to make it comparable to the funding that is awarded to other, less deadly cancers.

Twitter handle: @thecuckoosnest

Yesterday’s interview with Lucy Kalanithi was on Lisa Goldman’s blog Every Breath I Take.

Tomorrow’s interview with Kim Ringen will be on Tori Tomalia’s blog A Lil Lytnin’ Strikes Lung Cancer

All profiles can be found the day after posting on the #LCSM Chat blog at A list of links to all the profiles on the original bloggers’ pages can be found at on the #LCSM Chat site on the Profiles in Lung Cancer page.


  1. It is helpful that you are candid about your smoking history.

    However, stating that " if we could eliminate smoking, we could eliminate 80% of cancer causes" will only promote more cuts to LC research funding.

    Here is some real common sense- even if all smokers quit today- it would take many years for lung cancer due to smoking to cease. Then you go on to state that " this would free up funds for non smoker cancer research.

    This only re in forces those that feel that ex smokers do not deserve research funding. I do not know about you, but I sure don't believe that " taking responsibilit" means that I deserve the death penalty for my former smoking!

    I also see that you are 48 . Many of the 70year olds who are former smokers and lung cancer patients really cannot " take responsibility", at least not full responsibility for their lung cancer because the truth about cigarettes and their dangers was hidden for so many years.

    In summary, I respect your right to voice your opinions. However, my opinion is that your publicizing your opinions will only further the " smokers do not deserve research funding stigma" that kills so many people.

  2. WHAT A GREAT MIRACLE THAT I HAVE EVER SEE IN MY LIFE. My names are Clara David I’m a citizen of USA, My younger sister was sicking of
    breast cancer and her name is Sandra David I and my family have taking her
    to all kind of hospital in USA still yet no good result. I decided to go to
    the internet and search for cancer cure so that was how I find a lady
    called peter Lizzy she was testifies to the world about the goodness of a
    herbal man who has the roots and herbs to cure all kind of disease and the
    herbal man email was there. So I decided to contact the herbal man @herbalist_sakura for my
    younger sister help to cure her breast cancer. I contacted him and told him
    my problem he told me that I should not worry that my sister cancer will be
    cure, he told me that there is a medicine that he is going to give me that
    I will cook it and give it to my sister to drink for one week, so I ask how
    can I receive the cure that I am in USA, he told me
    That I will pay for the delivery service. The courier service can
    transport it to me so he told me the amount I will pay, so my dad paid for
    the delivery fee. two days later I receive the cure from the courier
    service so I used it as the herbal man instructed me to, before the week
    complete my sister cancer was healed and it was like a dream to me not
    knowing that it was physical I and my family were very happy about the
    miracle of Doctor so my dad wanted to pay him 5 million us dollars the
    herbal man did not accept the offer from my dad, but I don't know why he
    didn't accept the offer, he only say that I should tell the world about him
    and his miracle he perform so am now here to tell the world about him if
    you or your relative is having any kind of disease that you can't get from
    the hospital please contact or whats app him
    +2348110114739 / via his website you can follow him up on Instagram @herbalist_sakura for the cure, he will help you out with the
    problem. And if you need more information about the doctor you can mail me 

  3. Good post, thanks for sharing.
    Best Neurologist in JP Nagar Bangalore,Contact us best neurologist in jp nagar bangalore

  4. Fantastic post, Keep sharing
    Potato Chips Manufacturers in Hyderabad , Contact us potato chips manufacturers in hyderabad

  5. Amazing post thanks for sharing the post.Your blogs are admirable and full of knowledge
    For web design & development service contact Multisoft digital technologies, We have Web Design Company in Uttara Kannada


Post a Comment

Please support the EGFR Resisters Research Fund!

To help improve outcomes for people like me with EGFR mutated lung cancer, please donate to the EGFR Resisters' Research Fund. All donations are tax deductible and are in a restricted fund with the Bonnie Addario Lung Cancer Foundation, a four-star rated charity. Thank you from the bottom of my heart!

Popular posts from this blog

Telling stories to myself

My Carbon Footprint Grows Ever Larger

New Year, Old Dusty Blog