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This is how I would reword Shakespeare: Nothing offends me about my life so much as the manner of my leaving it. It’s not the disease, or the timing that makes me feel that way. It’s the staggering amount of energy that is consumed as part of cancer care - energy in the form of miles driven and plastic tossed into a biowaste disposal canister. I haven’t lived an exemplary life when it comes to the amount I have contributed to landfills. I’m not even good about composting my food waste. Still, getting sick has enlarged my carbon footprint, and I’m not done yet. There’s the matter of how to dispose of my mortal remains, for one thing, plus I’m not done with blood draws and treatments. Take the simple matter of a blood draw. Initially they were all taken from a vein. Waste generated: an alcohol wipe, a rubber tourniquet, a pair of gloves, a butterfly needle with attached plastic tube, a few glass vials, and a couple of pieces of gauze topped with a bandaid. Now, however, I ...

It’s been almost a year and a half since I posted anything here except links to paid work published elsewhere. This blog has remained in my thoughts throughout the whole period of silence.  Silent here, not elsewhere. The past year has been full of speaking engagements, patient advisory panels for pharmaceutical companies, other words in other places. What I’ve written and said has been sincere and well-researched, but has not included some things I think about. When you are writing and speaking for pay, you aren’t really free to share everything that might be on your mind. The customers for paid pieces want them to be hopeful and encouraging, to suit their purposes. My time and energy has also been invested in establishing a new patient advocacy group, the EGFR Resisters . Co-founders are Ivy Elkins, Jill Feldman, Teri Kennedy, Allen Lee, Ildiko Medve, and Colleen Sturdivant. Besides a website, we also have a closed Facebook group with over 900 members who share  tre...