New Year, Old Dusty Blog
It’s been almost a year and a half since I posted anything here except links to paid work published elsewhere. This blog has remained in my thoughts throughout the whole period of silence. Silent here, not elsewhere. The past year has been full of speaking engagements, patient advisory panels for pharmaceutical companies, other words in other places. What I’ve written and said has been sincere and well-researched, but has not included some things I think about. When you are writing and speaking for pay, you aren’t really free to share everything that might be on your mind. The customers for paid pieces want them to be hopeful and encouraging, to suit their purposes. My time and energy has also been invested in establishing a new patient advocacy group, the EGFR Resisters . Co-founders are Ivy Elkins, Jill Feldman, Teri Kennedy, Allen Lee, Ildiko Medve, and Colleen Sturdivant. Besides a website, we also have a closed Facebook group with over 900 members who share tre...
