Blog Posts for the Free to Breathe Patient Support Site at HealthUnlocked.com: Survivorship and Support

I continue to blog at the Free to Breathe patient support site, and help to build a supportive community for lung cancer patients, survivors, and caregivers. Here are four recent posts about issues of survivorship and support:

Anniversaries, Cancerversaries, and Milestones of Treatment and Survivorship:
"I opened my 13th bottle of Tagrisso last weekend, marking a full year of treatment with this very new T790M and EGFR inhibitor. It’s been a great year, full of love and adventures. I feel like celebrating, even though celebrating a milestone with a lung cancer treatment may not be everyone’s idea of a good time."


Sharing Our Personal News About Lung Cancer
"If you are a lung cancer patient or survivor who is getting periodic scans, you are guaranteed to have news from time to time. How do you share the news? Who do you share it with? What about bad news versus good news - does that affect how you share your scan results and other news?"

Finding a Balance - 7 Ideas for Not Being All Lung Cancer All the Time
"Does it seem like every conversation you have ends up being about your lung cancer? Is it the first thing you think about in the morning, the last thing you think about at night? Are your social media feeds one cancer related item after another? Do you wish sometimes that you could just live, and not think about lung cancer at all?"

What do lung cancer patients want from our medical teams?
"I recently had the opportunity to talk to a group of medical professionals about lung cancer survivorship issues, and a major focus of my talk was telling them what I think lung cancer patients want from our medical teams."

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To help improve outcomes for people like me with EGFR mutated lung cancer, please donate to the EGFR Resisters' Research Fund. All donations are tax deductible and are in a restricted fund with the Bonnie Addario Lung Cancer Foundation, a four-star rated charity. Thank you from the bottom of my heart!


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