Post from lungcancer.net: Using Twitter for Connection and Information

Engrossing, fast-paced, fascinating, accepting: these are how I describe the bi-weekly #LCSM chats on Twitter. The acronym translates to Lung Cancer Social Media, and a group of advocates, patients, and medical professionals have committed themselves to hosting these hour-long discussions of important lung cancer topics. The official site: lcsmchat.com. The site has the next topic to be discussed and a list of questions that will be covered by attendees. There are also links to much other information of value: transcripts of past chats, lists of blogs, and many other resources.

Newcomers to Twitter and to the chats are often confused about how to use Twitter and participate in #LCSM. I wrote a beginner’s guide on lungcancer.net to help more people take advantage of this great resource.


“For one hour, patients, advocates, oncologists, surgeons, and pathologists discuss a selected topic. The group is warm and inclusive, and your voice is as valued as the tweets of the medical professionals, some of whom are leaders in lung cancer research.”


Now that I have caught up with archiving what I have written everywhere else, I am going to take a break from lung cancer on this blog for a post or two. Thank you for bearing with me as I update my anthology of links.

Comments

Post a Comment

Please support the EGFR Resisters Research Fund!

To help improve outcomes for people like me with EGFR mutated lung cancer, please donate to the EGFR Resisters' Research Fund. All donations are tax deductible and are in a restricted fund with the Bonnie Addario Lung Cancer Foundation, a four-star rated charity. Thank you from the bottom of my heart!


Popular posts from this blog

Telling stories to myself

Truly, I have the power - the power to make myself unhappy. The most effective way I do it is by telling stories to myself. I've been a daydreamer all my life, spinning tales that I tell only to myself. There is a common pattern to these stories: I am nearly always a central character, and they don't really end, they just peter off. Events in the stories also do not go well for me. Relationships sour, people die, projects remain undone, deadlines are not met. And the stories leave a bad after-taste in my thoughts and emotions. A while ago, I went through a period of contentment. It happened to be a time when I was blogging more actively. One day as I drove to work, I realized that I had stopped telling stories to myself. Telling stories to the world in written words seems to clear my thoughts of the dark tales, and to help prevent me from making myself unhappy. Isn't this the heart of meditation - to not tell stories to oneself, to not cling to those dark tales, to let them
Read more

My Carbon Footprint Grows Ever Larger

Image
This is how I would reword Shakespeare: Nothing offends me about my life so much as the manner of my leaving it. It’s not the disease, or the timing that makes me feel that way. It’s the staggering amount of energy that is consumed as part of cancer care - energy in the form of miles driven and plastic tossed into a biowaste disposal canister. I haven’t lived an exemplary life when it comes to the amount I have contributed to landfills. I’m not even good about composting my food waste. Still, getting sick has enlarged my carbon footprint, and I’m not done yet. There’s the matter of how to dispose of my mortal remains, for one thing, plus I’m not done with blood draws and treatments. Take the simple matter of a blood draw. Initially they were all taken from a vein. Waste generated: an alcohol wipe, a rubber tourniquet, a pair of gloves, a butterfly needle with attached plastic tube, a few glass vials, and a couple of pieces of gauze topped with a bandaid. Now, however, I
Read more

New Year, Old Dusty Blog

It’s been almost a year and a half since I posted anything here except links to paid work published elsewhere. This blog has remained in my thoughts throughout the whole period of silence.  Silent here, not elsewhere. The past year has been full of speaking engagements, patient advisory panels for pharmaceutical companies, other words in other places. What I’ve written and said has been sincere and well-researched, but has not included some things I think about. When you are writing and speaking for pay, you aren’t really free to share everything that might be on your mind. The customers for paid pieces want them to be hopeful and encouraging, to suit their purposes. My time and energy has also been invested in establishing a new patient advocacy group, the EGFR Resisters . Co-founders are Ivy Elkins, Jill Feldman, Teri Kennedy, Allen Lee, Ildiko Medve, and Colleen Sturdivant. Besides a website, we also have a closed Facebook group with over 900 members who share  treatment ex
Read more